The Epilepsy Therapy Project (ETP), an NGO dedicated to accelerating new therapies for people living with epilepsy and seizures and the parent organization of epilepsy.com, released a novel iPhone application called My Epilepsy Diary. It’s touted as a “state-of-the-art, comprehensive data-gathering and reporting tool designed to improve epilepsy care,” and released as part of an integrated suite of consumer health tools and information – the Epilepsy Therapy Project Clinical Organizer.
According to the official press release, My Epilepsy Diary goes beyond conventional medication diaries, capturing “comprehensive and multi-dimensional information” which not only helps people with epilepsy, but also their families and physicians. Users can track events and manage epilepsy and treatments together with their healthcare team. Moreover, the app also helps track medications and dosages, and users can even setup email or text reminders to take medications.
Then there’s a Personal History module that allows for building of much more detailed profiles, which include non-epilepsy-specific details of the patient’s life and health, including familial patterns…
I’ll stop here. Considering there are 50 million people around the planet living with diagnosed and treated epilepsy, it’s great to have a tool like My Epilepsy Diary available. Unfortunately, it’s an iPhone thing only at the moment, and I hope ETP will also brings its app to other platforms at some point in the future.
My Epilepsy Diary (FREE) [iTunes link]